<?xml version="1.0" encoding="UTF-8"?>
<codeBook xmlns="ddi:codebook:2_5" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xmlns:xs="http://www.w3.org/2001/XMLSchema" xsi:schemaLocation="ddi:codebook:2_5         http://www.ddialliance.org/Specification/DDI-Codebook/2.5/XMLSchema/codebook.xsd">
  <docDscr>
    <citation>
      <titlStmt>
        <titl xml:lang="FR">The European Schizophrenia Cohort </titl>
        <subTitl/>
        <altTitl xml:lang="FR">EuroSC</altTitl>
        <altTitl xml:lang="EN">EuroSC</altTitl>
        <parTitl xml:lang="EN">The European Schizophrenia Cohort</parTitl>
        <IDNo>PEF73208</IDNo>
      </titlStmt>
      <rspStmt>
        <AuthEnty affiliation="ITMO Santé Publique, Aviesan">Portail Épidémiologie-France</AuthEnty>
        <othId/>
      </rspStmt>
      <prodStmt>
        <producer abbr="PEF-HD" affiliation="ITMO Santé Publique, Aviesan">Portail Épidémiologie-France | Health Databases</producer>
        <copyright>Portail Épidémiologie-France 2026</copyright>
        <prodDate date="2026-04-12">12/04/2026</prodDate>
        <prodPlac>https://epidemiologie-france.aviesan.fr/</prodPlac>
        <software/>
        <fundAg/>
        <grantNo/>
      </prodStmt>
      <distStmt>
        <distrbtr>Portail Épidémiologie-France</distrbtr>
        <contact email="portail-epidemiologie@inserm.fr">Portail Epidemiologie-France</contact>
        <depositr>Jean-Michel Azorin</depositr>
        <depDate xml:lang="FR">26/08/2015</depDate>
        <depDate xml:lang="EN">05/07/2016</depDate>
        <distDate>05/09/2017</distDate>
      </distStmt>
      <serStmt>
        <serInfo/>
      </serStmt>
      <verStmt>
        <version xml:lang="FR" date="05/09/2017">4</version>
        <version xml:lang="EN" date="05/07/2016">2</version>
        <verResp>Jean-Michel Azorin</verResp>
        <notes/>
      </verStmt>
      <biblCit/>
      <holdings xml:lang="FR" location="Portail Epidemiologie-France" URI="http://admin-epid-prod2.inserm.fr/fr/content/view/full/87829">EuroSC - The European Schizophrenia Cohort </holdings>
      <holdings xml:lang="EN" location="Portail Epidemiologie-France" URI="http://admin-epid-prod2.inserm.fr/fr/content/view/full/88614">EuroSC - The European Schizophrenia Cohort</holdings>
      <notes/>
    </citation>
    <guide/>
    <docStatus/>
    <notes/>
  </docDscr>
  <stdyDscr>
    <citation>
      <titlStmt>
        <titl xml:lang="FR">The European Schizophrenia Cohort </titl>
        <subTitl/>
        <altTitl xml:lang="FR">EuroSC</altTitl>
        <altTitl xml:lang="EN">EuroSC</altTitl>
        <parTitl xml:lang="EN">The European Schizophrenia Cohort</parTitl>
        <IDNo/>
      </titlStmt>
      <rspStmt>
        <AuthEnty affiliation="AP-HM Southern Regional Hospitals">Azorin Jean Michel</AuthEnty>
        <AuthEnty affiliation="Royal Free and University College Medical School, UCL">Paul Bebbington</AuthEnty>
        <othId xml:lang="FR">EuroSC Research Group (Allemagne, Angleterre, France)</othId>
        <othId xml:lang="EN">EuroSC Research Group (Germany, England, France)</othId>
      </rspStmt>
      <prodStmt>
        <producer role="Secteur Public">Royal Free and University College Medical School.. Pour la partie Francaise : Hôpital Sainte Marguerite , Marseille</producer>
        <copyright/>
        <prodDate/>
        <prodPlac> - AP-HM Southern Regional Hospitals - </prodPlac>
        <prodPlac> - Royal Free and University College Medical School, UCL - Wolfson Building
48 Riding House Street
London W1W 7EY, UK</prodPlac>
        <software/>
        <fundAg xml:lang="FR" role="Mixte">Lundbeck A/S ; German Federal Ministry of Education and Research</fundAg>
        <fundAg xml:lang="EN" role="Mixed">Lundbeck A/S ; German Federal Ministry of Education and Research</fundAg>
        <grantNo/>
      </prodStmt>
      <distStmt>
        <distrbtr>AP-HM Southern Regional Hospitals</distrbtr>
        <distrbtr>Royal Free and University College Medical School, UCL</distrbtr>
        <contact affiliation="AP-HM Southern Regional Hospitals" email="Jean-michelRoch.AZORIN@ap-hm.fr     jazorin@ap-hm.fr">Azorin Jean Michel</contact>
        <contact affiliation="Royal Free and University College Medical School, UCL" email="p.bebbington@ucl.ac.uk">Paul Bebbington</contact>
        <depositr>Jean-Michel Azorin</depositr>
        <depDate xml:lang="FR">26/08/2015</depDate>
        <depDate xml:lang="EN">05/07/2016</depDate>
        <distDate xml:lang="FR">05/09/2017</distDate>
        <distDate xml:lang="EN">05/07/2016</distDate>
      </distStmt>
      <serStmt>
        <serName/>
        <serInfo/>
      </serStmt>
      <verStmt>
        <version xml:lang="FR" date="05/09/2017">4</version>
        <version xml:lang="EN" date="05/07/2016">2</version>
        <verResp>Jean-Michel Azorin</verResp>
        <notes/>
      </verStmt>
      <biblCit/>
      <holdings/>
      <notes/>
    </citation>
    <studyAuthorization>
      <authorizingAgency>CNIL</authorizingAgency>
      <authorizationStatement xml:lang="FR">CNIL</authorizationStatement>
      <authorizationStatement xml:lang="EN">CNIL</authorizationStatement>
    </studyAuthorization>
    <stdyInfo>
      <studyBudget/>
      <subject>
        <keyword xml:lang="FR">Schizophrénie</keyword>
        <keyword xml:lang="FR">prise en charge</keyword>
        <keyword xml:lang="FR">traitement</keyword>
        <keyword xml:lang="FR">qualité de vie</keyword>
        <keyword xml:lang="FR">soins</keyword>
        <keyword xml:lang="FR">coût</keyword>
        <keyword xml:lang="EN">schizophrenia</keyword>
        <keyword xml:lang="EN">management</keyword>
        <keyword xml:lang="EN">treatment</keyword>
        <keyword xml:lang="EN">quality of life</keyword>
        <keyword xml:lang="EN">care</keyword>
        <keyword xml:lang="EN">cost</keyword>
        <topcClas xml:lang="FR">Psychologie et psychiatrie</topcClas>
        <topcClas xml:lang="EN">Psychology and psychiatry</topcClas>
        <topcClas xml:lang="FR">Produits de santé</topcClas>
        <topcClas xml:lang="FR">Systèmes de soins et accès aux soins</topcClas>
        <topcClas xml:lang="EN">Medicine</topcClas>
        <topcClas xml:lang="EN">Healthcare system and access to health care services</topcClas>
      </subject>
      <abstract xml:lang="FR">Objectif de la base de données : L'objectif primaire de EuroSC est de rapporter les différents types de traitement et de soins ainsi que les résultats cliniques. &#13;
Les objectifs secondaires comprennent :l'évaluation des besoins de traitement par rapport aux résultats, le calcul de la consommation des ressources associé à différentes méthodes de soins, et l'identification des facteurs pronostiques</abstract>
      <abstract xml:lang="EN">Database objective : The main aim of EuroSC is to report on the different types of treatment and care, as well as clinical outcome.&#13;
Secondary aims include: assessment of treatment requirements in relation to outcome, calculation of resource usage with regards to different care methods and identification of prognostic factors.</abstract>
      <sumDscr>
        <timePrd/>
        <collDate event="start">1998</collDate>
        <collDate event="end">2002</collDate>
        <collDate xml:lang="FR">Collecte des données terminée</collDate>
        <collDate xml:lang="EN">Data collection completed</collDate>
        <nation>France</nation>
        <geogCover xml:lang="FR">Europe - France (Lille, Lyon, Marseille, Clermont-Ferrand, Toulon)</geogCover>
        <geogCover xml:lang="EN">Europe — France (Lille, Lyon, Marseilles, Clermont-Ferrand, Toulon)</geogCover>
        <geogUnit>International</geogUnit>
        <anlyUnit xml:lang="fr">individuel
                </anlyUnit>
        <anlyUnit xml:lang="en">individuals
                </anlyUnit>
        <universe xml:lang="FR" clusion="I">Patients âgés de 18 à 64 ans au moment de l'inclusion &#13;
Diagnostic de schizophrénie établi&#13;
Consentement du participant</universe>
        <universe xml:lang="EN" clusion="I">Patients between 18 and 64 years old at baseline; &#13;
Established schizophrenia diagnosis; &#13;
Participant consent</universe>
        <universe xml:lang="FR">Nombre d'individus : France :288  UK : 302 ; Germany : 618</universe>
        <universe xml:lang="EN">Number of individuals: France: 288; UK: 302; Germany: 618 </universe>
        <universe xml:lang="FR">Recrutement via une sélection de services ou établissements de santé</universe>
        <universe xml:lang="EN">Recruiting through a selection of health institutions and services</universe>
        <universe xml:lang="FR" level="Tranche d'âge">Adulte (19 à 24 ans)</universe>
        <universe xml:lang="FR" level="Tranche d'âge">Adulte (25 à 44 ans)</universe>
        <universe xml:lang="FR" level="Tranche d'âge">Adulte (45 à 64 ans)</universe>
        <universe xml:lang="EN" level="Age range">Adulthood (19 to 24 years)</universe>
        <universe xml:lang="EN" level="Age range">Adulthood (25 to 44 years)</universe>
        <universe xml:lang="EN" level="Age range">Adulthood (45 to 64 years)</universe>
        <universe xml:lang="FR" level="Type de population">Sujets malades</universe>
        <universe xml:lang="EN" level="Population type">Sick population</universe>
        <universe xml:lang="FR" level="Pathologie">F20 - Schizophrénie</universe>
        <universe xml:lang="EN" level="Pathology">F20 - Schizophrenia</universe>
        <universe xml:lang="FR" level="Sexe">Masculin</universe>
        <universe xml:lang="FR" level="Sexe">Féminin</universe>
        <universe xml:lang="EN" level="Sex">Male</universe>
        <universe xml:lang="EN" level="Sex">Female</universe>
        <dataKind xml:lang="FR">Bases de données issues d’enquêtes</dataKind>
        <dataKind xml:lang="EN">Study databases</dataKind>
        <dataKind xml:lang="FR">Etudes de cohortes</dataKind>
        <dataKind xml:lang="EN">Cohort study</dataKind>
        <dataKind xml:lang="FR">Données cliniques : Antécédents psychiatriques, informations socio-démographiques, diagnostic, traitement, état spychatrique (SCAN SCAN, Positive and Negative Syndrome Scale (PANSS), Calgary Depression Scale for Schizophrenia (CDSS), Clinical Global Impression (CGI), The Global Assessment of Functioning (GAF), Global Assessment of Relational Functioning (GARF)) et social, consommation de médicaments et effets secondaires, observance du traitement (The Rating of Medication Influences (ROMI) Scale,), voie par le biais du système de soins et de la consommation de ressources de services</dataKind>
        <dataKind xml:lang="FR">Données déclaratives : Face à face</dataKind>
        <dataKind xml:lang="EN">Clinical data: Psychiatric history, sociodemographic information, diagnosis, treatment, psychiatric and social state (SCAN SCAN, Positive and Negative Syndrome Scale (PANSS), Calgary Depression Scale for Schizophrenia (CDSS), Clinical Global Impression (CGI), Global Assessment of Functioning (GAF), Global Assessment of Relational Functioning (GARF)) medication use and side effects, treatment adherence (Rating of Medication Influences (ROMI) Scale,), healthcare system pathway and usage of service resources.</dataKind>
        <dataKind xml:lang="EN">Declarative data: Face to face interview</dataKind>
        <dataKind xml:lang="FR">Evénements de santé/morbidité</dataKind>
        <dataKind xml:lang="FR">Consommation de soins/services de santé</dataKind>
        <dataKind xml:lang="FR">Qualité de vie/santé perçue</dataKind>
        <dataKind xml:lang="EN">Health event/morbidity</dataKind>
        <dataKind xml:lang="EN">Health care consumption and services</dataKind>
        <dataKind xml:lang="EN">Quality of life/health perception</dataKind>
        <dataKind xml:lang="FR">Hospitalisation</dataKind>
        <dataKind xml:lang="FR">Consultations (médicales/paramédicales)</dataKind>
        <dataKind xml:lang="FR">Produits de santé</dataKind>
        <dataKind xml:lang="EN">Hospitalization</dataKind>
        <dataKind xml:lang="EN">Medical/paramedical consultation</dataKind>
        <dataKind xml:lang="EN">Medicines consumption</dataKind>
      </sumDscr>
      <qualityStatement>
        <standardsCompliance>
          <standard>
            <standardName/>
            <producer/>
          </standard>
          <complianceDescription/>
        </standardsCompliance>
        <otherQualityStatement xml:lang="FR"/>
        <otherQualityStatement xml:lang="EN"/>
        <otherQualityStatement xml:lang="FR"/>
        <otherQualityStatement xml:lang="EN"/>
      </qualityStatement>
      <notes/>
      <exPostEvaluation>
        <evaluator/>
        <evaluationProcess/>
        <outcomes/>
      </exPostEvaluation>
    </stdyInfo>
    <studyDevelopment>
      <developmentActivity>
        <description/>
        <participant/>
        <resource>
          <dataSrc/>
          <dataSrc/>
          <dataSrc/>
          <dataSrc/>
          <srcOrig/>
          <srcChar/>
          <srcDocu/>
        </resource>
        <outcome/>
      </developmentActivity>
    </studyDevelopment>
    <method>
      <dataColl>
        <timeMeth method="http://www.ddialliance.org/Specification/DDI-CV/TimeMethod_1.2_Genericode1.0_DDI-CVProfile1.0.xml">Longitudinal: Cohort/Event-based</timeMeth>
        <dataCollector affiliation="AP-HM Southern Regional Hospitals">Azorin Jean Michel</dataCollector>
        <dataCollector affiliation="Royal Free and University College Medical School, UCL">Paul Bebbington</dataCollector>
        <collectorTraining/>
        <frequenc xml:lang="FR">Tous les 6 mois pendant 2 ans suite à l'inclusion</frequenc>
        <frequenc xml:lang="EN">Every 6 months for 2 years following enrolment.</frequenc>
        <sampProc xml:lang="FR"/>
        <sampProc xml:lang="EN"/>
        <deviat/>
        <collMode xml:lang="FR">Par le personnel médical des centres concernés </collMode>
        <collMode xml:lang="EN">By medical staff in the centres concerned.</collMode>
        <collMode xml:lang="FR">Dossier clinique : Antécédents psychiatriques, informations socio-démographiques, diagnostic, traitement, état spychatrique (SCAN SCAN, Positive and Negative Syndrome Scale (PANSS), Calgary Depression Scale for Schizophrenia (CDSS), Clinical Global Impression (CGI), The Global Assessment of Functioning (GAF), Global Assessment of Relational Functioning (GARF)) et social, consommation de médicaments et effets secondaires, observance du traitement (The Rating of Medication Influences (ROMI) Scale,), voie par le biais du système de soins et de la consommation de ressources de services</collMode>
        <collMode xml:lang="EN">Direct physical measures: Psychiatric history, sociodemographic information, diagnosis, treatment, psychiatric and social state (SCAN SCAN, Positive and Negative Syndrome Scale (PANSS), Calgary Depression Scale for Schizophrenia (CDSS), Clinical Global Impression (CGI), Global Assessment of Functioning (GAF), Global Assessment of Relational Functioning (GARF)) medication use and side effects, treatment adherence (Rating of Medication Influences (ROMI) Scale,), healthcare system pathway and usage of service resources.</collMode>
        <collMode xml:lang="FR">Face à face : Qualité de vie (Medical Outcome Study Short Form 36 (SF36), The Social and Occupational Functioning Assessment Scale (SOFAS), Quality of Life Interview (QoLI), EuroQoL)</collMode>
        <collMode xml:lang="EN">Face to face interview: Qualité de vie (Medical Outcome Study Short Form 36 (SF36), The Social and Occupational Functioning Assessment Scale (SOFAS), Quality of Life Interview (QoLI), EuroQoL)</collMode>
        <collMode xml:lang="FR"/>
        <collMode xml:lang="EN"/>
        <collMode xml:lang="FR"/>
        <collMode xml:lang="EN"/>
        <resInstru/>
        <instrumentDevelopment/>
        <sources>
          <dataSrc/>
          <srcOrig/>
          <srcChar/>
          <srcDocu/>
        </sources>
        <collSitu/>
        <actMin/>
        <ConOps/>
        <weight/>
        <cleanOps/>
      </dataColl>
      <notes/>
      <anlyInfo>
        <respRate/>
        <EstSmpErr/>
        <dataAppr/>
      </anlyInfo>
      <stdyClas/>
      <dataProcessing/>
      <codingInstructions>
        <txt/>
        <command/>
      </codingInstructions>
    </method>
    <dataAccs>
      <setAvail>
        <accsPlac/>
        <origArch/>
        <avlStatus xml:lang="FR">Contacter le responsable scientifique</avlStatus>
        <avlStatus xml:lang="EN">Contact the scientist in charge.</avlStatus>
        <collSize/>
        <complete/>
        <fileQnty/>
        <notes/>
      </setAvail>
      <useStmt>
        <confDec/>
        <specPerm/>
        <restrctn xml:lang="FR">Contacter le responsable scientifique</restrctn>
        <restrctn xml:lang="EN">Contact the scientist in charge.</restrctn>
        <contact/>
        <citReq/>
        <deposReq/>
        <conditions xml:lang="FR">Contacter le responsable scientifique</conditions>
        <conditions xml:lang="EN">Contact the scientist in charge.</conditions>
        <disclaimer/>
      </useStmt>
      <notes/>
    </dataAccs>
    <othrStdyMat>
      <relMat xml:lang="FR"/>
      <relMat xml:lang="FR"/>
      <relStdy/>
      <relPubl xml:lang="FR">http://www.biomedcentral.com/1472-6963/12/269#B4</relPubl>
      <relPubl xml:lang="FR">http://tinyurl.com/PUBMED-EUROSC</relPubl>
      <relPubl xml:lang="EN">http://www.biomedcentral.com/1472-6963/12/269#B4</relPubl>
      <relPubl xml:lang="EN">http://tinyurl.com/PUBMED-EUROSC</relPubl>
      <othRefs xml:lang="FR"/>
      <othRefs xml:lang="EN"/>
    </othrStdyMat>
    <notes/>
  </stdyDscr>
</codeBook>
